I've been pretty miraculously lucky with my shunt, but I think I miiiiight be having the beginnings of a malfunction.
For about the last couple weeks, I've been getting wicked headaches that last a few minutes. Pressure on my forehead, pressure on the back of my eyeballs, I can hear my pulse in my ears (same as with fluid buildup from an ear infection), sometimes I get a weird tension in my shoulders. Not confidence inspiring. I'm not excited.
Shunt first put in when I was 9 months old, that one was good for 14+ years. Revised when I was 15, I'm 31 now. Revision was just the distal section, I still have the same big-gung-ho-1980s ventricular catheter.
In 2008, there was this stretch of headaches that went on for like, two months.
Headache specialist in 2008 put me on Diamox (acetazolamide) for a short time; that almost instantly fixed it. Headaches vanished within probably 36 hours after the first dose. (side effect is kidney stones; ridiculously painful. Also, carbonated beverages taste LIKE HELL ON TOAST) -- So I never finished them. Kidney stones large enough to have sedimentary stripes in them are right out.
I still had some of the pills left over from the last time (October 2008) and tried that on my own. No effect this time -- just the bad taste from carbonated beverages -- no effect on the headaches.
Advil or Tylenol handle it, but I don't want to take painkillers for something that is a new thing.
My appointment with Neurology is on May 10th. WHAT THE HELL. four weeks?
thoughts? What symptoms do y'all get with your shunt headaches?